One of the things that are really advancing Medical Cannabis is the fact that Medical Cannabis helps children in need.
I was at Seattle CannaCon 2018 and the speaker at the Medical Cannabis session had to bow out.
I was sitting there when this little bundle of energy walked up the to stage and said, “My Name is Megan Holt and this is Maddie’s story.”
Megan and Maddie
Meagan Holt is an advisor at Seattle Children’s Hospital and core staff for Seattle Hempfest, a founding member and Director of Project PC, and is also the author of “Just Breathe”, Baby. But she is more than that.
Cannabis has provided an immeasurable amount of relief and comfort to countless numbers of people. For Maddie Holt, her daughter, it has given her time.
Maddie was born in November 2012 with Zellweger Syndrome, a terminal genetic disease that destroys the white matter of the brain and affects the production of long chain fatty acids. The rare disorder affects 1 in 50,000 live births, reports the National Organization for Rare Disorders (NORD).
The Medical Challenge
“Most children with this devastating disease do not survive past their first year of life,” explained Maddie’s mother, Meagan Holt. The syndrome can often affect most organs in the body, according to NORD. Now four, the disease has left Maddie deaf, blind, and completely dependent on a feeding tube.
Her other symptoms include osteoporosis, kidney stones, liver dysfunction, coagulopathy, anemia, low muscle tone, adrenal insufficiency, and in January of 2015, she developed seizures.
In 2015 when Maddie was two, the Holt’s turned to Cannabis, desperate to provide their daughter some peace. As a result, they also found hope.
“When we began using cannabis, she was maxed out at 26 pharmaceuticals and her medical team was out of options,” said Holt. Daily seizures caused Maddie to stop breathing, and at just two years old, she was put on hospice with the expectation her life would end soon. “Cannabis was our last bit of hope, and all we hoped for at that point was for her to be at peace,” said Holt.
The Medical Solution
The treatment proved significant. “Cannabis allowed my daughter to have seizure free days,” said Holt, “It helped her to breathe through the seizures she does have.” In addition, the treatment has decreased the number of pharmaceuticals needed from 26 to only four, a reduction of 22 medications. It also got her off hospice and has given her a quality of life they never thought possible.
Maddie’s treatment consists of a combination of cannabis products, Holt explained. “She uses a high CBD full-extract cannabis oil. We give her four doses per day, so she essentially receives 90 mg CBD and 45mg THC-A every single day.”
For the times when her symptoms flare up, or the number of her seizures increase, Maddie is given a “stress dose,” which includes an extra dose of a 1:1 tincture containing 3 mg of CBD and 3 mg THC-A. The Holts also use medicated topicals, such as Kush Creams, for congestion and skin sensitivity, and Cannabis Basics Naked lip butter for her lips.
To rescue Maddie from her seizures, said Holt, she is given a THC-A isolate. “This is very new for Maddie, […] but over the last 35 days, she has had six seizures and THC-A has stopped ALL of them.”
As far as strains, Holt said that Cannatonic, ACDC, Sour Tsunami, and Harlequin have worked well for Maddie.
“To see my child making improvements, re-learning sign language, kicking her feet, playing with toys and laughing… Cannabis not only brought Maddie back to life, but it restored my passion. It encouraged me to embrace the voice inside of me and to stand up for what I believed in. It gave me purpose again.”
After reading this, you might be more interested in Medical Cannabis for Families. Are these the physical challenges you have? We will bet you have some of these challenges and are looking to figure out if Medical Cannabis is right for you. Next, you need to find out more about “How to Safely Use Medical Cannabis,” 5-Steps to Safely Using Medical Cannabis, and the MediCannaCare Low and Slow Testing Process. Click here to Start.